How things change

Hello all, I hope everyone is doing well. I have some not so good news to report about my health. I do state I have lupus but rarely get into specifics of the disease. I have had issues with my kidneys for years but with a hospital stay and fluids they always recover. Well,my doctors have found that protein is spilling into my kidneys and it’s toxic. My kidney function is normally 60% and I’m at 30% now and with the toxin it will not bounce back. The 2 meds that are used to treat this condition have not worked for me. In my doctors words, our backs are up against the wall. This is not what I want to hear. Our next step is to triple my steroids and for me to get what is called “a blast” if high dose IV steroids for 3 consecutive days. Once I go back to the doctor in April if the level of protein hasn’t changed we must look at options of transplant. It’s funny because my doctor did not bring up transplant I did, that is why I love him he doesn’t want to anticipate it not working or getting me worked up on the possibility of it not working. I also asked a question in reference to treatment. If lupus is taken off the table and a person has toxic protein spilling into their kidneys are there treatments that they get that can be tried on me. He’s looking into this option as well. My family is so positive and trying to keep me up as well. But the fears and doubts creep in and I’m so so scared. If you have read this and you believe in the power of prayer, please pray for me and my healing. Thank you and God bless.

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